Back in 2015, my husband and I wrestled with the decision to have a VNS placed for our son Owen to help with his seizure management. It was a decision that we didn't make instantly. You can read about that process in this post. VNS Surgery Day. Now that Owen's device has been in … [Read more...]
5 Tips for Road Trips with a Child with Angelman Syndrome
When your family has a child with Angelman Syndrome, like our Owen, traveling can be challenging. Owen thrives in routine, and while he enjoys seeing new things, he's often overwhelmed with stimulation on the road. This leads to an increased seizure threshold, and behaviors. … [Read more...]
How to Recover Emotionally After Your Child Has an Unexpected Surgery
Unexpected surgeries for your child are never fun. The path to the surgery is often filled with emotional stress, mental overwhelm, and pain. Once they're over, you can't just jump back into your normal schedule. This is especially true if you have other children. … [Read more...]
Raising a Child with Angelman Syndrome: 15 Struggles
February 15th is Angelman Syndrome Awareness Day. Last year on this day, I published a post on 15 Ways AS Changed Our Lives. Today, I wanted to share another personal glimpse at raising a child with this rare condition. I love Owen very much, and I know that the Lord has a … [Read more...]
Special Needs Hygiene: The Basics
Special needs hygiene isn't always convenient. It isn't always easy. And sometimes, it's downright hard. But, it's so important! You see, as my other kids get older, they take over the responsibility of their own hygiene for the most part. I might have to remind them to put … [Read more...]