The MAD Diet has produced at least three side effects with Owen.
The first two are wonderful, the third not so much
Owen has found his voice again! He used to babble all the time, and even had words that we interpreted as hug and love. Then his medical disaster year of 2012 happened, and he’s pretty much been silent for the majority of the past three years.
It was one of those things that I have to admit I hadn’t really thought of much. But looking back, he was definitely pretty quiet since he started having major seizure troubles.
Not anymore! Owen is back to babbling. I love hearing his voice!
Seizures.
These are down at least 50%. They are hard to track because Owen’s seizures are so short that they are easy to miss. But his noticeable seizures are down. It’s an answer to prayer for sure.
And then we have sleep.
Actually, according to my FitBit, that is something I don’t have much of. My weekly average last Tuesday to today was 2 hours and 51 minutes. Let me just say that Owen IS NOT SLEEPING!
And that’s not good. He has learned to rock his Dutch door really hard. We lock it from the outside so he can’t yet open it, but he lets the whole house know he’s awake. If I get him and put him on the couch with me, he will stay quiet, but not sleep. He is just always awake.
I can start a movie on his iPad for him and lock it so he can’t get out of it, but as soon as it’s over he is back to beating the door. Poor guy, not sure what is going on, but it’s sure not sleep!
I’m going to meet with the dietician again Thursday and see if she has any ideas, because before the diet he was finally sleeping all night consistently. He is on medication for sleep, but it sure isn’t working anymore. Hopefully she will have some ideas, because it is hard walking around tired all the time.
Unfortunately, we’ve had to make the sleep or seizure decision before (when his original sleep med was causing seizures), and sleep will eventually win.
Lord willing, we won’t have to make that call again though–everything else on the diet is working fabulously!
Now if you’ll excuse me, it’s quiet time and I’m going to try and catch up on some sleep!
