Back in 2015, my husband and I wrestled with the decision to have a VNS placed for our son Owen to help with his seizure management. It was a decision that we didn't make instantly. You can read about that process in this post. VNS Surgery Day. Now that Owen's device has been in … [Read more...]
How to Recover Emotionally After Your Child Has an Unexpected Surgery
Unexpected surgeries for your child are never fun. The path to the surgery is often filled with emotional stress, mental overwhelm, and pain. Once they're over, you can't just jump back into your normal schedule. This is especially true if you have other children. … [Read more...]
Gift Ideas for a Child with Angelman Syndrome
It hardly seems possible, but my son with Angelman Syndrome will be a teenager next year. Buying gifts for Owen has always been a challenge, but as he gets older, it becomes even more so. I don't want to buy him "baby" stuff, but everything needs to be safe for him. So in … [Read more...]
How to Discern What’s Wrong When You Child Can’t Speak
Because of his Angelman Syndrome, Owen can't speak. When he's hurting or sick, he can't tell me what's wrong. And he doesn't usually have the control over his body to point to what's wrong. Which means trying to figure out what's wrong when he's hurting or sick can be a … [Read more...]
The Latest in Our Battle with Pica
Owen developed Pica in 2012. He was constantly on the lookout for things to destroy and eat. He tore through pillows, ripped tags off of clothing, and eaten books. For the past four years, we've dealt with emergency surgeries to remove stuck objects, worried about bowel ruptures, … [Read more...]
- 1
- 2
- 3
- …
- 7
- Next Page »