Owen's Pica has spiraled almost completely out of control. He is constantly on the lookout for anything he can fit in his mouth. He's tried to eat (and succeeded in some) strange things lately, including colored pencils, erasers, diaper tabs (he rips these off), socks, and any … [Read more...]
We Postponed Surgery
Hi again... A brief update to my long lost last night. After talking and praying this morning, and checking out the forecast, Bryan and I decided to postpone Owen's VNS surgery. With highs in the 100s for the next long while, and an old house with no A/C, and a little … [Read more...]
VNS Surgery Day
Just a post to let you know that Owen is having VNS surgery today at 930 am, and for me to work through some of my thoughts/feelings that are keeping me up tonight... Why VNS Surgery? Even though the MAD diet has reduced his seizures, we hate not letting Owen have his … [Read more...]
Owen’s New Wheels
Owen's wheelchair was finally approved by the insurance, and we were able to pick it up yesterday. Many thanks must go to my step-dad Steve for driving us into Shriner's Hospital in Spokane. I was terrified of driving the bus into downtown, and worried about parking. I'm … [Read more...]
Voice, Seizures and Sleep
The MAD Diet has produced at least three side effects with Owen. The first two are wonderful, the third not so much Owen has found his voice again! He used to babble all the time, and even had words that we interpreted as hug and love. Then his medical disaster year … [Read more...]
MAD Diet
Today was day two of the Modified Atkins Diet for Owen. I must say that his hand tremor has ceased, and he only had a handful of seizures today. An incredibly quick response, which reminds me of when we started the Keto diet back in 2012. Pros? Lots more food! We have target … [Read more...]
And We’re Discharged!
After surgery, Owen had a hard time keeping his temperature up and just waking up in general. He was already tired from staying up most of the night. So we stayed longer than we usually do following surgery.But he woke up this morning and ate and drank enough to make the doctor … [Read more...]