February 15th is Angelman Syndrome Awareness Day. Last year on this day, I published a post on 15 Ways AS Changed Our Lives. Today, I wanted to share another personal glimpse at raising a child with this rare condition. I love Owen very much, and I know that the Lord has a … [Read more...]
The Latest in Our Battle with Pica
Owen developed Pica in 2012. He was constantly on the lookout for things to destroy and eat. He tore through pillows, ripped tags off of clothing, and eaten books. For the past four years, we've dealt with emergency surgeries to remove stuck objects, worried about bowel ruptures, … [Read more...]
6 Ways My Child with Special Needs Improved My Homeschooling
The iPad’s beeping annoyingly, as a child pushes yet another incorrect button. A YouTube Video streams on my oldest child’s computer, and a couple of my youngest learners are playing with alphabet blocks. Welcome to my homeschool! It’s nothing like I ever dreamed of. As a … [Read more...]
Angelman Syndrome Awareness Day
February is International Rare Disease Month. Since Angelman Syndrome originates from a problem on the 15th chromosome, February 15th is International Angelman Awareness Day. That's today! In a hope to bring awareness to this rare disease, I'm going to share 15 ways … [Read more...]
Owen’s VNS Surgery Update
Owen's device got turned on almost two weeks ago, following his VNS surgery in late October. He hasn't slept much since. Currently, his device is going off every five minutes for 30 seconds. My educated guess is that Owen isn't used to the sensation yet. I'm praying that … [Read more...]
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