My husband enjoys taking photographs. In his free time, he often grabs his camera and puts it to use, capturing great photos of the kids, the farm, and the local scenery. Over the years, he's gotten much practicing taking pictures of our child with Angelman Syndrome. Actually, … [Read more...]
7 Crucial Tasks to Help Someone Else Care for Your Child with Angelman Syndrome
In just a few days, I'm doing something I've never done before. I'm getting on an airplane with my husband and heading to Missionary Candidate Seminar. That means I'm leaving the kids behind for two weeks, including my child with Angelman Syndrome. And while grandparents have … [Read more...]
Gift Ideas for a Child with Angelman Syndrome
It hardly seems possible, but my son with Angelman Syndrome will be a teenager next year. Buying gifts for Owen has always been a challenge, but as he gets older, it becomes even more so. I don't want to buy him "baby" stuff, but everything needs to be safe for him. So in … [Read more...]
How to Discern What’s Wrong When You Child Can’t Speak
Because of his Angelman Syndrome, Owen can't speak. When he's hurting or sick, he can't tell me what's wrong. And he doesn't usually have the control over his body to point to what's wrong. Which means trying to figure out what's wrong when he's hurting or sick can be a … [Read more...]
15 Blessings of Raising a Child with Angelman Syndrome
It's February 15th, and Angelman Syndrome Awareness Day. My oldest son, Owen, has Angelman Syndrome. In honor of this, and to help raise awareness for this rare condition, I want to share 15 ways raising a child with Angelman Syndrome has blessed us. Yes, raising a child … [Read more...]
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