Between Owen's Angelman Syndrome, and the wide range of kids in the house (spanning from 5 months to 17 years), finding toys that engage all the kids is challenging. If they're too small, the little guys and Owen can eat them. If they're too babyish, the middles and older … [Read more...]
15 Ways Angelman Syndrome Has Changed My Parenting
It's February 15th! Do you know what that means? It's Angelman Syndrome Awareness Day. In honor of this rare disorder, which my oldest son Owen has, I'm continuing my tradition of posting an Angelman Syndrome post today. You can find my posts from previous years here: … [Read more...]
How to Recover Emotionally After Your Child Has an Unexpected Surgery
Unexpected surgeries for your child are never fun. The path to the surgery is often filled with emotional stress, mental overwhelm, and pain. Once they're over, you can't just jump back into your normal schedule. This is especially true if you have other children. … [Read more...]
5 Things My Son with Angelman Syndrome Taught Me About Christmas
My longtime readers know all about Owen. He's our oldest son, and has Angelman Syndrome. That's a deletion on the 15th chromosome that leaves Owen unable to talk, plagued with seizures, and struggling with a severe case of Pica. Since November is behind us and the Christmas … [Read more...]
Promoting Independence in a Child with Angelman Syndrome
As Owen, our child with Angelman Syndrome, grows, one thing become obvious. He is getting bigger and stronger, and I will not always be able to do all the things I am currently doing to help him. I just won't be strong enough. He's beginning puberty now, and I know he has … [Read more...]
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