Unexpected surgeries for your child are never fun. The path to the surgery is often filled with emotional stress, mental overwhelm, and pain. Once they're over, you can't just jump back into your normal schedule. This is especially true if you have other children. … [Read more...]
5 Things My Son with Angelman Syndrome Taught Me About Christmas
My longtime readers know all about Owen. He's our oldest son, and has Angelman Syndrome. That's a deletion on the 15th chromosome that leaves Owen unable to talk, plagued with seizures, and struggling with a severe case of Pica. Since November is behind us and the Christmas … [Read more...]
Promoting Independence in a Child with Angelman Syndrome
As Owen, our child with Angelman Syndrome, grows, one thing become obvious. He is getting bigger and stronger, and I will not always be able to do all the things I am currently doing to help him. I just won't be strong enough. He's beginning puberty now, and I know he has … [Read more...]
Photographing a Child with Angelman Syndrome
My husband enjoys taking photographs. In his free time, he often grabs his camera and puts it to use, capturing great photos of the kids, the farm, and the local scenery. Over the years, he's gotten much practicing taking pictures of our child with Angelman Syndrome. Actually, … [Read more...]
7 Crucial Tasks to Help Someone Else Care for Your Child with Angelman Syndrome
In just a few days, I'm doing something I've never done before. I'm getting on an airplane with my husband and heading to Missionary Candidate Seminar. That means I'm leaving the kids behind for two weeks, including my child with Angelman Syndrome. And while grandparents have … [Read more...]
Gift Ideas for a Child with Angelman Syndrome
It hardly seems possible, but my son with Angelman Syndrome will be a teenager next year. Buying gifts for Owen has always been a challenge, but as he gets older, it becomes even more so. I don't want to buy him "baby" stuff, but everything needs to be safe for him. So in … [Read more...]
How to Discern What’s Wrong When You Child Can’t Speak
Because of his Angelman Syndrome, Owen can't speak. When he's hurting or sick, he can't tell me what's wrong. And he doesn't usually have the control over his body to point to what's wrong. Which means trying to figure out what's wrong when he's hurting or sick can be a … [Read more...]
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