In just a few days, I'm doing something I've never done before. I'm getting on an airplane with my husband and heading to Missionary Candidate Seminar. That means I'm leaving the kids behind for two weeks, including my child with Angelman Syndrome. And while grandparents have … [Read more...]
Gift Ideas for a Child with Angelman Syndrome
It hardly seems possible, but my son with Angelman Syndrome will be a teenager next year. Buying gifts for Owen has always been a challenge, but as he gets older, it becomes even more so. I don't want to buy him "baby" stuff, but everything needs to be safe for him. So in … [Read more...]
How to Discern What’s Wrong When You Child Can’t Speak
Because of his Angelman Syndrome, Owen can't speak. When he's hurting or sick, he can't tell me what's wrong. And he doesn't usually have the control over his body to point to what's wrong. Which means trying to figure out what's wrong when he's hurting or sick can be a … [Read more...]
15 Blessings of Raising a Child with Angelman Syndrome
It's February 15th, and Angelman Syndrome Awareness Day. My oldest son, Owen, has Angelman Syndrome. In honor of this, and to help raise awareness for this rare condition, I want to share 15 ways raising a child with Angelman Syndrome has blessed us. Yes, raising a child … [Read more...]
Raising a Child with Angelman Syndrome: 15 Struggles
February 15th is Angelman Syndrome Awareness Day. Last year on this day, I published a post on 15 Ways AS Changed Our Lives. Today, I wanted to share another personal glimpse at raising a child with this rare condition. I love Owen very much, and I know that the Lord has a … [Read more...]
Teaching Your Kids to Swallow Pills
Owen has a g-tube. For the first several years of his life, all of his medications were liquid and we simply put them through the tube. Then he switched to the Ketogenic diet. Since liquid medicine has more carbs, they were no longer an option. For the first time, I had to figure … [Read more...]
The Latest in Our Battle with Pica
Owen developed Pica in 2012. He was constantly on the lookout for things to destroy and eat. He tore through pillows, ripped tags off of clothing, and eaten books. For the past four years, we've dealt with emergency surgeries to remove stuck objects, worried about bowel ruptures, … [Read more...]
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