Seizure Overload & Walking If you remember where we last left off, Owen was on the ketogenic diet, eating everything he could fit in his mouth, and having abdomen problems. Finally in October, the abdomen issues came to a head again. We took him back to the doctor who … [Read more...]
Owen’s Story: Part 4
If you missed the first parts: 1, 2, and 3 The Seizure BattleOwen's battle with seizures became recognizable to us when he was about 18 months old. He was at therapy with Bryan, and had a grand mal. After a trip to the ER, Owen was referred to the pediatric … [Read more...]
Owen’s Story: Part 3
If you've missed the earlier parts of Owen's story, you can find them here: Part 1, Part 2. Angelman SyndromeWe headed to the geneticist in August of 2007, hoping to learn more about Prader-Willi and our chances of having more children with this syndrome. After a … [Read more...]
Owen’s Story: Part 2
This is the story of Owen--our angel here on Earth. If you missed part one, you can find it here. MisdiagnosisWe noticed that Owen spit up...a lot! Our whole house soon began to smell like acid. The doctor said it was acid reflux, and that we'd keep a close eye on Owen's … [Read more...]
Owen’s Story: Part 1
Our Angel on Earth Owen's story starts way back in 2005. I had just graduated college, and starting my first teaching position in a high school severe/profound special education classroom. My husband was in his final year of his Navy enlistment, and preparing to … [Read more...]